With Graci working on her walking every day, we've been reflecting on how far she's come... and how far we've come. We were talking last night about the early days, when we first learned Graci had Down Syndrome, and how much time we spent online looking for stories, pictures, really anything that would help us understand where we were headed.
We had hoped to have our spirits lifted, but instead so much of the time we were led to information that really made us even more uneasy. An example is ending up somehow on a memorial page when looking for information on Graci's heart condition related to DS. We decided that night to stop using the Internet to blindly search for information and instead to follow the guidance from her doctors. They led us to the National and Regional websites that would better answer our questions.
As a way to help guide parents, relatives and friends into the world of Down Syndrome, we thought it would be fun to dedicate a page to our Blog that will include pictures and a little story about your DS angel. This will be a separate page on our GraciStory website and will appear on the Android and iPhone apps under a new Menu item. Each picture and story will be a new blog entry for that page.
If you would like to participate, please send a picture of your child along with one or two paragraphs about your experience with your little angel. Please send via email to GraciStory @ gmail com. We are excited to hear about and help you share your story!
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